Connections 2025: Shared Needs, Unique Experiences brings together researchers, clinicians, and families for a focused two-hour virtual gathering designed to deepen understanding of SYT1 Syndrome. The conference will open with educational sessions that establish a shared foundation on genetics, SYT1 function, and overlapping mechanisms across related disorders.

Leading scientists will share concise research updates spanning clinical mapping, biological models, and cellular studies, complemented by insights from the GAA team’s natural history efforts.

Family stories will highlight lived experiences and diverse perspectives, followed by interactive audience engagement through polls and Q&A. The session will close by reflecting on collective themes - what’s shared and what’s distinct - and exploring opportunities for continued collaboration and progress.